19 December 2017

Santhera Launches “Take a Breath DMD” Respiratory Disease Awareness Campaign for patients with Duchenne Muscular Dystrophy


Liestal, Switzerland, December 19, 2017 – Santhera Pharmaceuticals (SIX:SANN), a specialty pharmaceutical company focused on the development and commercialization of innovative treatments for patients with rare diseases, announces the launch of a disease awareness campaign for the Duchenne muscular dystrophy (DMD) community in the U.S. with a focus on respiratory care.

The “Take a Breath DMD” campaign will underscore the importance of respiratory care for people living with Duchenne muscular dystrophy. The mission of this educational campaign is to help people living with DMD and their families receive information to help manage respiratory complications, including information about breathing, coughing and pulmonary care.

“I applaud Santhera for developing such an educational resource focused on the respiratory aspects of Duchenne muscular dystrophy. DMD is one of the most common and devastating types of muscular degeneration, and results in progressive muscle weakness and respiratory function decline that typically start in the first decade of life and lead to substantial life limitation.”

Oscar H. Mayer

MD, pediatric pulmonologist focused on treating neuromuscular diseases

On the campaign’s new educational website, TakeABreathDMD.com, patients and families residing in the U.S. can find practical, in-depth information in one centralized location. Visitors to the site can also sign up to receive additional interactive tools and resources in the future, as well as stay informed about new advances.

“Santhera’s mission is to support people living with DMD and their families by providing information to help manage the respiratory impact of the disease. We remain dedicated to working with the DMD patient community to help slow respiratory decline in people living with DMD.”

Thomas Meier

PhD, CEO of Santhera

In 2018, Santhera also plans to launch a similar respiratory awareness campaign for patients with DMD, their families and caregivers, not residing in the United States.


About Santhera

Santhera Pharmaceuticals (SIX: SANN) is a Swiss specialty pharmaceutical company focused on the development and commercialization of innovative pharmaceutical products for the treatment of orphan mitochondrial and neuromuscular diseases. Santhera's lead product Raxone® (idebenone) is authorized in the European Union, Norway, Iceland, Liechtenstein and Israel for the treatment of Leber's hereditary optic neuropathy (LHON). For Duchenne muscular dystrophy (DMD), Santhera has filed a Marketing Authorization Application in the European Union and Switzerland for DMD patients with respiratory function decline who are not taking glucocorticoids. In collaboration with the U.S. National Institute of Neurological Disorders and Stroke (NINDS) Santhera is developing Raxone® in a third indication, primary progressive multiple sclerosis (PPMS), and another product – omigapil – for congenital muscular dystrophy (CMD), both also areas of high unmet medical need. For further information, please visit the Company's website www.santhera.com.

Raxone® is a trademark of Santhera Pharmaceuticals.



For further information please contact:

public-relations@santhera.com or

Eva Kalias, Vio Consult

Phone: +41 78 671 98 86



For Investors:

investor-relations@santhera.com or

Christoph Rentsch, Chief Financial Officer                                   Hans Vitzthum, LifeSci Advisors

Europe: +41 61 906 89 65                                                             US: +1 212 915 2568

christoph.rentsch@santhera.com                                                hans@lifesciadvisors.com


Disclaimer / Forward-looking statements

This communication does not constitute an offer or invitation to subscribe for or purchase any securities of Santhera Pharmaceuticals Holding AG. This publication may contain certain forward-looking statements concerning the Company and its business. Such statements involve certain risks, uncertainties and other factors which could cause the actual results, financial condition, performance or achievements of the Company to be materially different from those expressed or implied by such statements. Readers should therefore not place undue reliance on these statements, particularly not in connection with any contract or investment decision. The Company disclaims any obligation to update these forward-looking statements.


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